Childhood Cancer Awareness Month

No news is good news.  I was hoping to make more posts during Childhood Cancer Awareness month, but that didn't work out so well.  Between work, the kids, CrossFit, ballet, Kumon, piano lessons, and everything else, I have been getting about 4-5 hours of sleep each night, so I am exhausted.  It doesn't help that I am a night owl and almost always stay up late, just as I am now.  However, as soon as I finish this blog post and give Elliott his nightly medication, I am going to sleep.

Elliott had his monthly clinic visit for chemo last Tuesday and I tried to document the day through photos and video, but Elliott had a lumbar puncture and woke up very cranky from he anesthesia, so I didn't do as much as I originally planned.  I did put a few photos below and some of you may have already seen he video of Elliott being cranky after anesthesia.

Elliott continues to respond well to treatment.  He has a little over a year left, but we only have to take him to treatment once a month instead of several times a month.  Other than being a little more tired on some days, and cranky when he is on steriod week, he really doesn't seem to experience side effects, which is great.  He is in school and enjoying interacting with friends.


Headed to the clinic

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Watching Daniel Tiger while waiting for the lumbar puncture.

Lumbar puncture complete.  After not being able to eat all morning, he is always hungry when he wakes up, so we always have a bag of snacks ready to go.

By the time we get to daycare, he is usually asleep, which works out well because it it usually nap time when we arrive around 12 or 1pm.