Elliott is responding well to chemotherapy. A large volume of fluid from his lungs and heart was removed over the last 24 hours. He was extubated this morning (They removed his breathing tube) and the pericardial tube has been removed. He is no longer sedated, and is becoming more and more alert every minute. We were able to hold for the first time since Wednesday this afternoon. He and Kyllan do not want to let each other go. He has been eating and drinking on his own this afternoon, but has yet to get his voice back. He still has his hair, which I have been threatening to cut for weeks. This is not how I wanted to see it go. As the medical team continues to monitor his ability to breath on his own, our goal in the next 24 hours is to have him moved from the cardiac ICU to the pediatric oncology wing. Once we are in the oncology we are going to bring his sister Laurel for a visit. They are best friends and have not seen each other since Wednesday.
This time last week Kyllan and I were celebrating our daughter 3rd birthday with a party in the backyard and Elliott sounded his healthiest in a month. We are overwhelmed and exhausted, but we find ourselves encouraged by Elliott's progress over the last 24 hours and all of our friends, family, and colleagues that have reached out to us. The pace of everything around should slow down once Elliott is able to be moved to oncology. Once that happens we will begin to think about the week ahead of us.